So my brother has celiac he had it bad. We got told the family should be tested as theres a high chance someone else will have it in the family. I have a few symptoms i have tooth enamel problems, I have psoriasis really bad - this is meant to be linked. Also feeling tired and unable to gain weight etc.So i thought i must have it, i went to get some blood tests a month ago, the doctor said they came back really high showing celiac .......so he referred me to the hospital to have a gastroscopy (camera down the throat) which i was dreading, but i got told this is the only way they can tell for sure and i wont receive any help if i dont do it soooooooo i braved it and had it done and also had another blood test dont......a few days ago went back for the results today and im soooo confused!!
They said my bowl is red or something there is no damage though, and my blood test came back fine.so i asked the doctor have a got celiac? and he said its very likey but i cant say for sure .. WHAT?? I went through that camera thing and they still cant tell me.
Why can't they tell me? So now they want me to eat gluten free food for 6 months then go back and have a camera up my bum? then they said they will be able to tell me.
I only had the gastroscopy so they would help me with food etc as my family members all get help with money off food as its expensive. I cant afford to eat special food.
Im from the uk and living in germany, so had all this treatment down in german. do you think there health care is okay?
Im so confused! why cant they just tell if i have it or not.
01101110110011 - Yes, it's very hard to diagnose a person with celiac disease!!! I may still have it and not even know it; the blood tests were negative but the symptoms remain.
ReplyDeleteYou actually do need to have the camera up there a couple times to properly diagnose the issue. :/ I know it's awful, but maybe you won't need to do that if you see significant results whilst cutting out the glutens.
Eat gluten free like they've asked, see if your symptoms calm down or if you feel any bettter, and let them know! Don't go through with a second gastroscopy if you don't feel you need it.